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Personal Finance (Not Investing) • Planning for disabled adult children - proposed wiki page

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beyou,

"Young adult still living with parents, so he pays me rent for his room, to satisfy the in-kind income issue. For today he does not need ABLE to pay rent elsewhere, since renting a room vs an entire apartment is affordable within the SSI benefit, and since food is no longer in kind income, we can provide food at our expense. But thinking ahead to his someday needing his own place, not sure if we should start funding the ABLE now for the future given there are annual limits."

We got a big head start and started maxing out the CAL-ABLE account when it was first available. Invested it aggressively knowing he would eventually become SSDI-DAC eligible and we would not need to worry about the 100K cap. This has worked out well because now he can live tax free on the earnings. We still max it out, but transfer the earnings incrementally to his VISA debit card for spending for birthdays, travel, incidentals, etc. Between SSDI and the earnings from investments, he has more than enough for his shelter, food, clothing and needs independent of us.

California eliminated the clawback so we are comfortable with it.
Seems a good plan for those who have or will get SSDI.
My son has SSI which was approved after age 22.
My son was not properly diagnosed before 22 and so there are no medical records to to justify getting retroactive determination and SSDI.
So we will have the $100k limit if we open an ABLE account.
My attorney who drafted our SNT discouraged us from opening an ABLE account.

Statistics: Posted by beyou — Wed Nov 12, 2025 10:52 pm — Replies 45 — Views 2401



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